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Dear Hormones

Dear Hormones

Dear Hormones, What are you playing at? Seriously, I thought we, as a body, were all in this together; fighting against the odds of EDS and Heart Failure, beating them against all expectations and doing a pretty impressive job of it actually.  Then, you took it...
Are you boxing yourself in?

Are you boxing yourself in?

I have spent most of my life, fighting my way out of boxes. Most of the time, other people boxed me in, with the certainty of science and plenty of experience behind their thinking. They told me with clarity and conviction that I belonged in this box and that being in...
Let’s talk about death, darling

Let’s talk about death, darling

Talking about our inevitable death and our wishes after the event, is not usually included in recommended light conversation for date night.  Even amongst those who work in roles where you’d expect talking about dying to be something they’re trained in, and despite us...